Who We Are
The Star Legacy Foundation is a 501(c)(3) non-profit organization dedicated to reducing pregnancy loss and neonatal death and improving care for families who experience such tragedies. We are a community of families, health professionals, researchers, policy makers, and individuals dedicated to helping every pregnancy have a happy ending.
To increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth, pregnancy loss, and neonatal death.
We believe there is great hope for the future to prevent many stillbirths and neonatal deaths in the United States and around the world. We envision that through the utilization of technology, education, grassroots efforts, and partnership, we can empower families and health professionals to identify and protect vulnerable babies.
- Many of the 26,000 annual stillbirths and additional neonatal deaths in the United States are preventable. In many cases stillbirth and neonatal deaths share common denominators.
- Expectant parents should be informed about stillbirth risks and educated on ways to reduce any risks
- Standard prenatal protocols should include third trimester ultrasounds to identify known stillbirth risk factors and subsequent management when risk factors are identified.
- Pregnancies with risk factors for stillbirth, especially if multiple risk factors exist, should be managed as high-risk pregnancies
- Data collected by hospitals about stillbirth and neonatal deaths should be expanded and coordinated among the states to provide better information to medical professionals, researchers, and the public.
- Autopsies should be encouraged and performed consistently with established protocols.
- Stillborn babies should be recognized with a certificate of birth resulting in stillbirth.
- Stillbirth families should be afforded a one time tax credit/deduction equivalent to the dependent child tax credit to help offset unexpected expenses of burial, mental health therapy and costs not covered by insurance companies.
- Families deserve support and guidance when facing the delivery of a stillborn baby, birth of a baby who will not survive, or death of a baby shortly after birth.
- Insurance companies should provide coverage for testing following a stillbirth including cord and placental examination, fetal autopsies, genetic testing and more.
- Stillbirth, neonatal death, birth injury, premature birth, and miscarriages have many common denominators – finding answers to stillbirth may enlighten the path to reducing all poor pregnancy outcomes.
What We Do
Through our national offices and our 20+ chapters across the United States we:
- Promote, support, and conduct research related to stillbirth and perinatal loss
- Conduct the collection of the world’s largest registry of pregnancy accessible to researchers who share our passion for the prevention of stillbirth and neonatal loss. (Pregnancy Research Project)
- Provide patient education materials to health care organizations and the public to help inform expectant families about any risk that exists and how to manage or reduce that risk
- Host Stillbirth Summits – multi-day conferences that bring together researchers, health professionals, bereaved families, and stillbirth advocates to learn about emerging evidence in stillbirth prevention and care and work together to support all efforts
- Provide family support materials and companion services to bereaved families
- Support and encourage legislation at state and federal levels that provide support for stillbirth prevention efforts and improve care of families experiencing perinatal loss
- Provide speakers to health care professionals, academic institutions, and public organizations to increase awareness of stillbirth issues, help disseminate current and emerging research, and enhance support for stillbirth families
- Host a nationwide telephone grief support line staffed by certified grief counselors
- Provide online video support groups for:
- bereaved parents
- grandparents and extended families
- couples experiencing pregnancies after loss
- parents challenged by parenting living children after a loss.
- fathers (coming soon)
- Raise awareness of issues related to pregnancy and infant loss and stillbirth prevention
- Monthly newsletters, blog postings and podcasts to bring current and relevant information from the experts to our constituents.
How your support makes a difference:
- Star Legacy Foundation is a nonprofit organization comprised and funded entirely by the generosity of our families, health professionals and concerned organizations. Your generous contribution of time, talents or treasures helps us to grow and expand to meet the needs of the United States and beyond.
- Learn more and contact us:
- Star Legacy Foundation
- 7820 Terrey Pine Court, Suite #80
- Eden Prairie, MN 55347