Who We Are
The Star Legacy Foundation is a 501(c)(3) non-profit organization dedicated to reducing pregnancy loss and neonatal death and improving care for families who experience such tragedies. We are a community of families, health professionals, researchers, policy makers, and individuals dedicated to helping every pregnancy have a happy ending.
To increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth, pregnancy loss, and neonatal death.
We believe there is great hope for the future to prevent many stillbirths and neonatal deaths in the United States and around the world. We envision that through the utilization of technology, education, grassroots efforts, and partnership, we can empower families and health professionals to identify and protect vulnerable babies.
- Many stillbirths and neonatal deaths are preventable.
- Expectant parents should be informed about stillbirth risks and educated on ways to reduce any risks
- Standard prenatal protocols should include third trimester ultrasounds to identify known stillbirth risk factors and subsequent management when risk factors are identified.
- Pregnancies with risk factors for stillbirth, especially if multiple risk factors exist, should be managed as high-risk pregnancies
- Data collected by hospitals about stillbirth and neonatal deaths should be expanded and coordinated among the states to provide better information to medical professionals, researchers, and the public.
- Autopsies should be encouraged and performed consistently with established protocols.
- Stillborn babies should be recognized with a certificate of birth resulting in stillbirth.
- Families deserve support and guidance when facing the delivery of a stillborn baby, birth of a baby who will not survive, or death of a baby shortly after birth.
- Stillbirth, neonatal death, birth injury, premature birth, and miscarriages have many common denominators – finding answers to stillbirth may enlighten the path to reducing all poor pregnancy outcomes.
What We Do
- Promote, support, and conduct research related to stillbirth and perinatal loss
- Provide patient education materials to health care organizations and the public to help inform expectant families about any risk that exists and how to manage or reduce that risk
- Host Stillbirth Summits – multi-day conferences that bring together researchers, health professionals, bereaved families, and stillbirth advocates to learn about emerging evidence in stillbirth prevention and care and work together to support all efforts
- Provide family support materials and companion services to bereaved families
- Support and encourage legislation at state and federal levels that provide support for stillbirth prevention efforts and improve care of families experiencing perinatal loss
- Provide speakers to health care professionals, academic institutions, and public organizations to increase awareness of stillbirth issues, help disseminate current and emerging research, and enhance support for stillbirth families
- Host a nationwide telephone support line staffed by certified grief counselors
- Provide support groups for bereaved families, bereaved extended families, and couples in a pregnancy after a loss in the Minneapolis/St Paul area. Additional groups to be added in 2017 in the New York Metro area.
- Raise awareness of issues related to pregnancy and infant loss and stillbirth prevention
How your support makes a difference:
- In addition to all of the above activities that we will continue to do, we are in the process of expanding our programs in the following ways:
- Promote data availability for research by developing and managing a stillbirth registry
- Communicate the newest concepts in stillbirth through creation of a peer-reviewed research journal
- Creation of a podcast to allow the community to ask questions of and learn from health professionals and researchers