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Saving Babies Lives Care Bundle: Adaptation and Implementation in the US

Background

Every year in the United States 25,000 babies are stillborn- a significant and life-changing event for birthing people and their families. The national stillbirth rate in 2017 (most recent data available) was 5.9/1,000 live births – significantly below the Healthy People 2020 goal of 5.6/1,000 live births. Following similar rates for other maternal and neonatal morbidity and mortality, the rate of stillbirth for black women (10.32/1,000 live births) is twice that of nonhispanic whites (4.89/1,000 live births) and for indigenous women (7.7/1,000 live births), the rate is higher as well.

Sadly, despite improvements in maternity care since 1940, the rate of stillbirth has remained relatively stable since the late 1990’s.

In addition to the obvious loss of life and subsequent grief for all family members involved, stillbirth contributes to maternal and mental health concerns. Women who experience a stillbirth are three times more likely to develop depression and post-traumatic stress disorder and two and a half times more likely to develop an anxiety disorder. Sixty to seventy percent of mothers report depression symptoms in the first year, with 25% of those still having symptoms four years later. Although these rates are similar for African American women as other women, the African American women are significantly less likely to receive treatment.

The Plan

Star Legacy Foundation and Ariadne Labs has partnered to reduce the rate of stillbirth in the U.S. The mission of the Foundation is to increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth, pregnancy loss, and neonatal death. 

Based on compelling work in the United Kingdom and Australia, Star Legacy Foundation’s goal is to implement best practices in the United States. The leaders at Star Legacy are seeking to establish a Learning Network/Collaborative to reduce the rate of stillbirth by 15% for 20-30 innovative organizations.  Development of an Implementation Innovation Learning Collaborative Ariadne Labs proposes to support the development of an Implementation Innovation Learning Collaborative over two phases:

● Phase One (9 months): Adapt “Saving Babies Lives Care Bundle” to the United States and provide an implementation strategy.
● Phase Two (12-18 months): Launch an Implementation Innovation Learning Collaborative composed of 20-30 well-positioned organizations with a diverse set of patients and stakeholders and a specific aim to reduce stillbirths by 15%.

In The News

 

HOW YOU CAN HELP

Download and print the Recruitment Flier

  • For Star Legacy Foundation
  • Project Chair – Lindsey Wimmer, RN, MSN, PHN, CPNP, CPLC
  • Finance, Logistics & Operations – Shauna Libsack
  • Family Support Specialist – Denise Nelsen, BSW
  • Chapter Development Coordinator – Laura Richert, RN
  • Outreach Coordinator – Amy Kent
  • Clinical Experts –
    • Alexander Heazell, MD
    • Heather Florescue, MD
    • Barbara Toppin, MD
    • Janes Nicholson, MD
    • Jane Warland, CNMN

Star Legacy Foundation would like to thank Marny Smith for her outstanding fundraising efforts to launch this project, in memory of her son Heath.

For Ariadne Labs

  • Francine Maloney, MPH Assistant Director, Impl (Project Manager)
  • Amber Weiseth, DNP – Interim Director
  • Meagan Elam, DrPH, MS – Implementation Specialist. 
  • Jasmine Kaduthodil  – Sr. Research Assistant. 
  • Judy Margo, DrPH  – Sr. Qualitative Specialist. 
  • Rose Molina, MD, MPH  – Clinical Subject Matter Expert
  • Jane Taylor, PhD – Sr. Improvement Advisor. 
  • Laura Onelio – Design Innovation Specialists.
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