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Mission, Vision & Program of Work

Who We Are

The Star Legacy Foundation is a 501(c)(3) non-profit organization dedicated to stillbirth research and education.  We are a community of parents, families, and friends of stillborn babies who are dedicated to reducing the number of families that endure such a needless tragedy.

Our Mission
The Star Legacy Foundation mission is to increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth.
Our Vision
šWe believe there is great hope for the future to prevent many stillbirths in the United States and around the world.  We envision that through the utilization of technology, education, grassroots efforts, and partnership, we can empower families and health professionals to identify and protect vulnerable babies.
We Believe…
  • šMany stillbirths are preventable.
  • šExpectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy.
  • šStandard prenatal protocols should include third trimester ultrasounds to identify known stillbirth risk factors and subsequent management when risk factors are identified.
  • šPregnancies with risk factors for stillbirth, especially if multiple risk factors exist, should be managed as high-risk pregnancies
  • šStillbirth data collected by hospitals should be expanded and coordinated among the states to provide better information to medical professionals, researchers, and the public.
  • šStillbirth autopsies should be encouraged and performed consistently with established protocols.
  • šStillborn children should be recognized with a certificate of birth resulting in stillbirth.
  • šFamilies deserve support and guidance when facing the delivery of a stillborn child and beyond.
  • šStillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators – finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury.

What We Do

  •  Promote, support, and conduct research related to stillbirth and perinatal loss
  •  Provide patient education materials to health care organizations and the public to help inform expectant  families about any risk that exists and how to manage or reduce that risk
  •  Host Stillbirth Summits – multi-day conferences that bring together researchers, health professionals, bereaved families, and stillbirth advocates to learn about emerging evidence in stillbirth prevention and care and work together to support all efforts
  •  Provide family support materials and companion services to bereaved families in the Minneapolis/St Paul area
  •  Support and encourage legislation at state and federal levels that provide support for stillbirth prevention efforts and improve care of families experiencing perinatal loss
  •  Provide speakers to health care professionals, academic institutions, and public organizations to increase awareness of stillbirth issues, help disseminate current and emerging research, and enhance support for stillbirth families

 How your support makes a difference:

  • In addition to all of the above activities that we will continue to do, we are in the process of expanding our programs in the following ways:
    • Promote data availability for research by developing and managing a stillbirth registry
    • Communicate the newest concepts in stillbirth through creation of a peer-reviewed research journal
    • Establish a fund to assist families with finances related to stillbirth autopsies or related testing
    • Creation of a radio blog show that will allow the community to ask questions of and learn from health professionals and researchers
    • Develop and staff a family support program including bereavement companions and support groups.
    • Continue leadership with the Action for Stillbirth Awareness and Prevention (ASAP) Coaltion to develop and enact a public awareness campagin.
The Star Legacy Foundation was created to honor the memory of precious children who live in the stars, but had an enormous impact on those of us here.

Permanent link to this article: http://starlegacyfoundation.org/mission-statement/

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