Throughout history, grassroots efforts have proven effective to enact legislation and the same can be true as it relates to helping raise stillbirth awareness and encourage prevention efforts. We need your help!
Remember, personal stories are the catalyst behind success! Whether you are emailing, writing, calling or meeting locally with your House and Senate representatives (preferred), share your story.
Star Legacy Foundation Congratulates Debbie Haine Vijayvergiya, a co-founder of the ASAP Coalition on her valliant efforts in her daughter’s memory. The bill was unanamiously approved by the Senate and will go to the Assembly before crossing the Govenor’s desk for signature.
This bill requires the Department of Health to establish policies and procedures to ensure the dignified and sensitive management of each stillbirth and of a family’s grieving process. It would also require the Health Department to collect information on stillbirths. Click here to read more about this bill. Read the full text of the bill.
There are three important pieces of federal legislation currently pending that need your support:
- The Sudden Unexpected Death Data Enhancement and Awareness Act (S.314/H.R.669)
This is the first and only federal legislation that holds promise of collecting comprehensive and consistent data on thousands of babies who die each year inexplicably to stillbirth and sudden unexpected death in infancy and childhood (SIDS/SUID/SUDC).
Sadly, we learned recently of the passing of Senator Frank Lautenberg (D-NJ). As the lead sponsor of this bill in the last two legislative sessions and its reintroduction in February of this year, Lautenberg was a true advocate for our nation’s most precious resource – our children.
In his memory, let’s continue the fight to get these bills through committee and signed into law this year!
- The Stillbirth Awareness and Research Act of 2013 (H.R.2365)
Currently there is no standard federal definition of stillbirth nor is there a standard protocol for the collection of stillbirth data, making any comprehensive research effort into the causes and prevention of stillbirth nearly impossible. These parents and their babies deserve more.
This bill was introduced by Congressman Peter King (R-NY) and addresses all of the problems with current stillbirth data collection methods and a lack of public awareness. Representative Michael McCaul (R-TX) has signed on as a lead co-sponsor.
- Parental Bereavement Leave – The Farley-Kluger Initiative to Amend the Family and Medical Leave Act (FMLA)
The issue with the current FMLA is that it does not extend benefits to employees who have experienced the death of a child. Initiated by Kelly Farley, founder of the Grieving Dads Project (www.grievingdads.com) and Barry Kluger, author and grieving father, the goal is to modify the existing FMLA to expand coverage and existing benefits to employees experiencing the death of a child.
Learn more about the Missing Angels Bill and take action in your state if it isn’t among those who have already enacted this legislation!
- The Missing Angels Bill will provide Certificates of Birth Resulting in Stillbirth to grieving parents, providing much needed recognition of their baby’s life and death. Currently only 25 of 50 states have passed this legislation.
Learn more and act today!